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If you were diagnosed with terminal cancer would you try an unapproved treatment?
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Posted 10/14/2021 14:05 (#9268734 - in reply to #9267201)
Subject: RE: If you were diagnosed with terminal cancer would you try an unapproved treatment?

Jeff@JR Production - 10/13/2021 17:43

2008 we started our journey on this type of treatment. We didn't know it was cancer, but by 2011 it was confirmed, and by 2015 it was on the NCI list.
The one thing we had that was a consistent monthly check-up and scans at Mayo clinic, and the last seven years was at Barnes-Jewish Hospital St Louis, MO.
The alternative treatments were done at four clinics, Goshen, IN, Hermosa, SD, Orlando, FL, and Anharbor, MI. we have had chelation, peptides, IV therapy using sodium EDTA with victims. Blood transfusions. This went on from 2008 through 2014 at the cost of $2,000,000.00 between treatments, hotel, and milage.
We started at Barnes-Jewish in 2014 on an FDA trial using combination experimental chemo that is blocker technology that works on the pathway and cytokine blocker.
Between Mayo clinic and Barnes-Jewish to date, we have spent a total of $11,000,000.00 between insurance which has been 80% of that number, and the rest would be out of pocket, in 2008, we had out of network cost of well over $250,000.00.
I will say this much my wife was on death's doorstep many times from 2008 through 2015; some of this was due to ex-partners pushing legal issue after legal issue, but when this calmed down, so made her trips to the ER, and so did the hospital stays. I tell you, an essential part is eliminating stress, as this will kill someone faster than cancer.
I will tell you this her quality of life has been 100% better in the last five years than the previous eight years.
Pray has been a significant part of this process as she was given five years to live in 2011! and to date, Doctor Ghohbadi of Barnes-Jewish stated this year she could be on the two experimental chemos for the duration of her life, like some using blood pressure medication and diabetes medication.
Be careful of alternative treatments as they can be more about the money in some cases than natural healing?
My phone is always on, and I would love to talk about our journey if you need help. I will say this; pray this has been a significant part of our day. We always pray together every night!

Thank you for sharing what I know has been an exhausting ordeal for all. Yes, we’ve also included much prayer before, during, and after mom’s battle and death. Before death was closer to taking her a family member sat down and got her to try and recall recipes and family stories or other info that needed to be put into writing. I suspect it was just too painful and awkward to try and video it all. Cancer and all that it does and can do to a person’s body had affected mom’s outward appearance. It was only right that we respected her request to not be recorded at that point in her life.

It’s not easy at times to talk about things in depth but I recall the final episode that put her back in the hospital one final time. She had been in and out of the hospitals so many times and eveyone was wore down to the core of exhaustion beyond description. Mom sensed the mini strokes coming on again and began to cry as she knew that death was getting closer. When the hospital finally released her after that last visit, it was for her to come home to pass away. A special ambulance with the motorized lift was used to transport her back to her house. That was so that she could be as comfortable as possible and not have to get out of the wheel chair which she now had to use. It was at that time she could no longer walk on her own as the cancer had spread all over.

We tried to prepare ourselves, as did she for what was soon to occur. What I’ve learned is that no matter how hard one tries to prepare themselves for the imminent loss of a loved one it’s never enough. The pain cuts deep and a void is left that remains. Time, prayer, and being honest and open about it all is what seems to lessen the grief. Not everyone grieves the same way of course. A friend told me that even after five years from when his mom passed he’d be somewhere and suddenly out of the blue the grief would hit him like a wave. Tears would start flowing.
Thanks for your kind offer to talk.
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